Engineering topics

S C Jorgensen

Publications and source records attributed to S C Jorgensen.

3 records

NASA NTRS2025

Why We Do What We Do: Data Reuse, Open Access, and Privacy in Data Management at the Life Sciences Data Archive

As custodian of the unique and irreplaceable collections of human subject research data generated by the Human Research Program and its predecessors throughout the agency’s history, the Life Sciences Data Archive (LSDA) is charged with protecting participants’ privacy and implementing their consent decisions as it provides retrospective data for use in new studies. This active, stewardship-focused approach to data management and preservation shapes the products that LSDA provides to researchers and the responsibilities of researchers in using the data and publishing their results. This presentation reviews how federal and agency mandates shape LSDA’s data management procedures and expectations for researchers. Topics covered will include LSDA’s movement towards implementation of the FAIR (Findable, Accessible, Interoperable, Reusable) principles and how the archive’s evolving data management practices support FAIR-ness; collaboration between LSDA and the Lifetime Surveillance of Astronaut Health (LSAH) project (the repository of astronaut medical data); LSDA’s response to the challenges of performing its stewardship role and maintaining trust given the public profiles of the subjects whose data it preserves; and the ever-increasing challenges to expectations of subject privacy stemming from the growing power and ubiquity of of data analysis and aggregation tools.

Data↗

NASA NTRSDate not supplied

Laying The Foundations for FAIR-ER Science: ISA And LSDA Data Submission Process in NASA’s Evolving Data Management Environment

The Life Sciences Data Archive (LSDA) archives data resulting from research on the effects of spaceflight on humans and the development of countermeasures to mitigate spaceflight hazards. Archivists work with researchers to ensure that unique and high value data products and their metadata are preserved and managed to support current and future research. Currently, LSDA is updating its procedures and data submission requirements in response to the evolving data preservation environment at NASA. LSDA is implementing best practices for research data management through the establishment of clear data submission guidelines, integration of the FAIR (Findability, Accessibility, Interoperability, Reusability) principles, and use of the ISA (Investigation, Study, Assay) research metadata framework for data discoverability and transparency into the data management processes. These changes directly impact LSDA’s requirements for research data submissions. The newly revised Research Data Submission Agreement (RDSA), formerly the Data Submission Agreement (DSA), introduces ISA-compatible metadata collection standards to LSDA’s process. Adherence to LSDA’s data submission guidelines enhances the FAIR-ness of the repository’s collections for future users. This presentation will discuss (1) how submission of research data and associated metadata are impacted by current data management policies, (2) benefits of the adoption of FAIR principles and the ISA metadata framework for retrospective studies utilizing existing LSDA datasets and historic data collections, and (3) the support LSDA will provide to researchers during this transition.

Data submission↗

NASA NTRSDate not supplied

Rediscovering Apollo Biomedical Data to Support Artemis: The Apollo Records Synthesis Project

With the first crewed missions of the Artemis Program on the horizon, including the return of humans to another planetary surface, the space medicine and research communities have a renewed interest in buying down risk on these missions using historic Apollo datasets. Archivists with NASA’s Life Sciences Data Archive (LSDA) and epidemiologists with the Lifetime Surveillance of Astronaut Health (LSAH) are collaborating on a project aiming at improving access to historic datasets from the Apollo Program. The Apollo Records Synthesis Project (ARSP) seeks to expand the available historic biomedical knowledge base by examining physical records located across a wide range of collections, including examples such as pre-flight and post-flight physicals, lab reports, and handwritten flight surgeon and biomedical engineer logs from Apollo missions. The ARSP team has been able to identify several previously undocumented sources of biomedical information from Apollo missions. In the future, the team will modernize record storage and accessibility of these resources using digitization and natural language processing. This poster will discuss the progress of the project, give context to the dual research-clinical care nature of the records, and highlight the challenges and opportunities in using data from historical records. This poster will also provide information on how researchers can request access to datasets from these records.

life sciences↗